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Partner angry


Jan 17, 2008, 8:44 PM
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My Brother
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I have a 16 year old baby brother. For the last few months, he's been a little off. Grades failing, barely able to handle swim practice, spacey. Just not typical stuff for him.

He got really sick last weekend and it ended up with a CT scan. They found a fairly large brain tumor. This was monday. Yesterday was the scariest day of my life, he was in surgery for 9 hours and they removed a tumor the size of a key lime. They called it an astrocyte. They were unable to remove the entire thing.

Today he's swollen, head covered in gauze. My baby brother looks like he's hurting. He can't move his right side yet and he's still unable to talk. They had to do a lot of pushing and pulling in his head that probably caused this. When the swelling goes down, they hope he'll come back.

We're watching him almost constantly now. He is improving. Still waiting on the biopsy results. Still waiting for him to heal up.

This is without question the hardest and scariest thing I've ever experienced. I know a few of you have met the mini angry. I consider a lot of you my friends. I just wanted to let you all know whats going on.

I'll post some updates occasionally.


caughtinside


Jan 17, 2008, 8:46 PM
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Best wishes for a full recovery angry, take care buddy.


coastal_climber


Jan 17, 2008, 8:49 PM
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Hope he gets better. Best wishes.

>Cam


imnotclever


Jan 17, 2008, 8:51 PM
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Best wishes, I'm hoping for you and your family.


(This post was edited by imnotclever on Jan 17, 2008, 8:52 PM)


wjca


Jan 17, 2008, 8:53 PM
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That's nothing a 16 year old should have to suffer. Best wishes to him. Make sure he knows how you feel about him and that his big brother is there for him.


imnotclever


Jan 17, 2008, 8:54 PM
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My post from the coffee shop today, I hope it brings you a little laugh:

imnotclever wrote:
Morning,

Not much going on here, just work.

Hey did anybody hear how Angry's brother's surgery went?

Still hoping for the best. I have visions of Angry's brother waking up form the surgery and telling the doc to eat his ass.


texasclimber


Jan 17, 2008, 9:02 PM
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I need not to be a close friend of yours to feel sympathy and to give the best of wishes to you and your family. I wish him the best and the same to your family.


krillen


Jan 17, 2008, 9:04 PM
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All the best to your brother, you and your family man. Good luck!


Arrogant_Bastard


Jan 17, 2008, 9:20 PM
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angry wrote:
I have a 16 year old baby brother. For the last few months, he's been a little off. Grades failing, barely able to handle swim practice, spacey. Just not typical stuff for him.

He got really sick last weekend and it ended up with a CT scan. They found a fairly large brain tumor. This was monday. Yesterday was the scariest day of my life, he was in surgery for 9 hours and they removed a tumor the size of a key lime. They called it an astrocyte. They were unable to remove the entire thing.

Today he's swollen, head covered in gauze. My baby brother looks like he's hurting. He can't move his right side yet and he's still unable to talk. They had to do a lot of pushing and pulling in his head that probably caused this. When the swelling goes down, they hope he'll come back.

We're watching him almost constantly now. He is improving. Still waiting on the biopsy results. Still waiting for him to heal up.

This is without question the hardest and scariest thing I've ever experienced. I know a few of you have met the mini angry. I consider a lot of you my friends. I just wanted to let you all know whats going on.

I'll post some updates occasionally.

Really sorry to hear that man, best wishes to all involved.

That's scary on several levels. I just had a friend go through, what sounds like, about the same thing. She found out early December. She noticed because her balanced deteriorated, especially after a drink or two. Biopsy came out negative, but they pulled one hell of a tumor out. Had to put in an arterial shunt too to return blood to normal in her head. She seems to be making a full recovery, but it took some time. I think the waiting is the hardest part. Again man, best wishes through this time.

I guess sometimes we take normal health for granted.


Partner artm


Jan 17, 2008, 9:23 PM
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texasclimber wrote:
I need not to be a close friend of yours to feel sympathy and to give the best of wishes to you and your family. I wish him the best and the same to your family.
What texasclimber just said.

best wishes, hang in there angry and tell your kid bro to do the same.


gogounou


Jan 17, 2008, 9:28 PM
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Wishing you and your brother all the best, angry. Hope he's back en forme in short order.

J


Partner philbox
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Jan 17, 2008, 9:35 PM
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Thinking all the best thoughts and prayers for your bro mate. Hope he makes a full recovery.


erisspirit


Jan 17, 2008, 9:45 PM
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wow I'm so sorry your family is having to go through something so scary. I hope all goes well and he recovers completely


wmfork


Jan 17, 2008, 9:53 PM
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Here's wishing him back being the carefree 16yr old he is asap.


reno


Jan 17, 2008, 9:57 PM
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Best wishes and thoughts and vibes heading to you and your family, bro.

My phone is on 24/7, if you need to bend an ear or vent or whatever.


climbs4fun
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Jan 17, 2008, 10:06 PM
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Wow. That's some scary shit. I hope all turns out for the best. Poor kid. Keep us up to date on how he's doing.


thomasribiere


Jan 17, 2008, 10:09 PM
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Best wishes to him, best wishes to you and your family.

Cancers suck that much. You make think of my late ex-gf.

Be strong. All of you.


Partner epoch
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Jan 17, 2008, 10:13 PM
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Angry, hope all goes as planned and I hope your bother has a speedy recovery. I'll keep your intentions in my thoughts and prayers.


dr_feelgood


Jan 17, 2008, 10:16 PM
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I suppose this would be a bad place to postwhore for the pageturn.

Angry- Sorry dude. I hope he recovers quickly.


Partner camhead


Jan 17, 2008, 10:18 PM
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best wishes to you and your brother, john.

I hope he'll be back to running down the talus to get us food shortly...


ddt


Jan 17, 2008, 10:20 PM
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Sorry to hear this angry. Best wishes to your brother for a full recovery. Also thinking of you and the rest of your family.

DDT


charley


Jan 17, 2008, 10:29 PM
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Sorry to hear this. That has got to be frightening. You and your family will be in my thoughts and prayers. Wishing the best of luck for your brothers complete and speedy recovery.


jgloporto


Jan 17, 2008, 10:33 PM
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Sorry to hear this. We are still dealing with my nephew's cancer on my front so I know how hard this can be. All the best for a speedy recovery!


Partner macherry


Jan 17, 2008, 10:59 PM
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that's rough stuff angry. Here's wishing a speedy recovery for your brother!!!!


clausti


Jan 17, 2008, 11:25 PM
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shit, dude.

adding my best wishes to the list of hoping for a full recovery- this has got to be so scary, but you're being a good brother, doing all you can. hope your family stays sane through this, too.


uhoh


Jan 17, 2008, 11:54 PM
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Stay strong. He'll pull through.


kantkatchme


Jan 18, 2008, 12:46 AM
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no one ever needs this...
sorry...
wishing you and your fam the best.

peace
-k


the_climber


Jan 18, 2008, 12:48 AM
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Angry, life can be the shits some days can't they. Hang in there man and keep positive. The waiting game is the hardest part. Wishing the best for your little bro and your Family.

Keep your chin up.


Partner happiegrrrl


Jan 18, 2008, 1:38 AM
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Reading your post, it's so obvious that your brother has the love and support of a caring family, and that will help him as he recovers from the surgery.

It must be so frightening, to get such a sudden shock, with time seemingly moving too fast with the immediate operation, and now to see him in a helpless state so very different than as you know him.

Remember to take care of yourself during this time, too. Try to get rest when you can. don't put too much on your plate and lean on friends, online and in life.

Best wishes for a full and speedy recovery for your brother, and strength to you family during this time.


notapplicable


Jan 18, 2008, 3:38 AM
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Sorry to hear that angry.

One of the most terrifing things in life is when control is taken away. Give him a few days to let his body reset and then he will be on his way to a full recovery in short order.


Partner angry


Jan 18, 2008, 4:06 AM
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Thanks guys, your support means a lot.

We were talking about the trip to Indian Creek we had. Paul and I needed something to eat and felt a little lazy. Fortunately for us, we had a 15 year to put to work. We got the kid to run down from the Fin wall to the parking lot and grab us some food. Not only did he come up with a pumpkin pie but he even brought the cool whip. That's how he rolls. Still can't talk but he smiled when I told him about that.

I asked him if he remembered playing with my huge cams in Vedauwoo this spring. He did. I thought he was going to bust out laughing when I asked if he remembered when I got my head stuck in Lucille.

The memory is there. He's just really hurting. Immediately after the surgery we were told that he could talk and use his right side. It was at night that he lost that. That means it wasn't damaged in the surgery but he lost this due to the swelling. Not surprising, you should see the bag of CSF that's collecting. When the swelling goes down it should all return. Even if it was a stroke the doctors say that this young in life he'd probably still be able to recover.

It's amazing. My mom works and has worked at all the different clinics and hospitals in town. She knows every nurse and every doctor. They are all in. My brother is the VIP. The brain surgeon lives in Wyoming because he likes it here, apparently he's so good he can live wherever he wants and people will travel to him. Everyone keeps saying that he's one of the top 5 in the country. I don't know who's ranking them but this guy is good, and we didn't have to travel.

While I'm home I'm sleeping in my brothers bedroom, my old bedroom. It really brings back a lot. His dog, I've posted m34tb0mz of her climbing trees, misses him but cuddles with me at night. I got to see my sister for the first time in over a year and her son. Except for the circumstances, this is a nice trip home. Very low key, no rush, I'm not going home until I have my brother back. I'm just spending time here.

I hope he improves as much tomorrow as he did today. I still don't know anything about the biopsy. It's still one day at a time. Right now I'm focusing on a kid who was tough enough to go to school and do 2 a day swim practices with a tumor in his head. His last race was a week ago. Anyone tough enough to do that can beat this. Thanks for reading my ramblings.


geogoddess


Jan 18, 2008, 4:39 AM
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Just checked in after being offline for a few days... sorry to hear about your little bro, angry. Keep the vigil with positive thoughts rolling, and know we're all sending some positive thoughts your way too. And enjoy the company of your family: if it wasn't for something like this, another few years might slip by without you guys connecting. He sounds like a stoked young guy, and he's in good care. keep us posted, I hope he pulls out a speedy recovery soon! -GG


Partner macherry


Jan 18, 2008, 4:44 AM
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angry wrote:
Thanks guys, your support means a lot.


I hope he improves as much tomorrow as he did today. I still don't know anything about the biopsy. It's still one day at a time. Right now I'm focusing on a kid who was tough enough to go to school and do 2 a day swim practices with a tumor in his head. His last race was a week ago. Anyone tough enough to do that can beat this. Thanks for reading my ramblings.

one tough kid brother. he's gonna beat this!!!!


reno


Jan 18, 2008, 5:21 AM
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angry wrote:
The memory is there. He's just really hurting.

Tell his nurse that. Not the doctor. The nurse. Tell her "My brother is in a lot of pain. Fix it. Now."

If the nurse doesn't get the doctor to write a prescription for the pain, get a new nurse.

Seriously. Your brother should NOT be in pain. At all. He might spend a few days gorked from drugs, but he should NOT be in pain.

In reply to:
Even if it was a stroke the doctors say that this young in life he'd probably still be able to recover.

Probably correct. Youthful exuberance and energy will trump physical defect every day of the week and twice on Sundays. Given a "Bring it on, bitches!!" attitude and a strong physical therapy regiment, your brother will hardly notice any long term effects.

In reply to:
It's amazing. My mom works and has worked at all the different clinics and hospitals in town. She knows every nurse and every doctor.

That helps. More than most folks appreciate.

In reply to:
They are all in. My brother is the VIP. The brain surgeon lives in Wyoming because he likes it here, apparently he's so good he can live wherever he wants and people will travel to him. Everyone keeps saying that he's one of the top 5 in the country. I don't know who's ranking them but this guy is good, and we didn't have to travel.

Who is his surgeon, and which hospital? I might know some folks.

In reply to:
Right now I'm focusing on a kid who was tough enough to go to school and do 2 a day swim practices with a tumor in his head. His last race was a week ago. Anyone tough enough to do that can beat this.

Yep. Your bro sounds tough. That will help.

In reply to:
Thanks for reading my ramblings.

'Tis why we're here, guy. We'll always listen when one of our own needs it.

Always.

Chin up, amigo. And get some sleep. Family often suffers more during things like this than the patient. You gotta take care of yourself, broham.


thomasribiere


Jan 18, 2008, 10:45 AM
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angry wrote:
Thanks guys, your support means a lot.

Thanks for reading my ramblings.

Man, that's what the community is for. I counted more than once on the community in my tough moments and I was never disappointed.
Your thoughts brought a tear to my eyes.

You'll wake up in a few hours. You'll probably turn the computer on, because it's hard not to do it! And you'll face a new day : I hope it brings you good news.

Be strong, angry!Smile


wanderlustmd


Jan 18, 2008, 12:15 PM
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Keep us posted Angry, he'll pull through. We are here to listen and help!

Keeping you in my thoughts/prayers.


binrat


Jan 18, 2008, 12:19 PM
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Angry, thats too bad.
16 years old........too young to have to go through this. On a good point hopefully his young age will work on full speedy recovery.
Just hang in there and remain positive for him.

Binrat


bent_gate


Jan 18, 2008, 1:25 PM
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Wow. It's so hard when something happens to the ones we love the most.

You and your brother (and your family) have my best thoughts and prayers.


rogue10186


Jan 18, 2008, 2:39 PM
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Damn dude, that's rough stuff, but he sounds like a fighter, he'll pull through. Best wishes to you.


Partner dominic7


Jan 18, 2008, 2:58 PM
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angry wrote:
Thanks guys, your support means a lot.

We were talking about the trip to Indian Creek we had. Paul and I needed something to eat and felt a little lazy. Fortunately for us, we had a 15 year to put to work. We got the kid to run down from the Fin wall to the parking lot and grab us some food. Not only did he come up with a pumpkin pie but he even brought the cool whip. That's how he rolls. Still can't talk but he smiled when I told him about that.

I asked him if he remembered playing with my huge cams in Vedauwoo this spring. He did. I thought he was going to bust out laughing when I asked if he remembered when I got my head stuck in Lucille.

The memory is there. He's just really hurting. Immediately after the surgery we were told that he could talk and use his right side. It was at night that he lost that. That means it wasn't damaged in the surgery but he lost this due to the swelling. Not surprising, you should see the bag of CSF that's collecting. When the swelling goes down it should all return. Even if it was a stroke the doctors say that this young in life he'd probably still be able to recover.

It's amazing. My mom works and has worked at all the different clinics and hospitals in town. She knows every nurse and every doctor. They are all in. My brother is the VIP. The brain surgeon lives in Wyoming because he likes it here, apparently he's so good he can live wherever he wants and people will travel to him. Everyone keeps saying that he's one of the top 5 in the country. I don't know who's ranking them but this guy is good, and we didn't have to travel.

While I'm home I'm sleeping in my brothers bedroom, my old bedroom. It really brings back a lot. His dog, I've posted m34tb0mz of her climbing trees, misses him but cuddles with me at night. I got to see my sister for the first time in over a year and her son. Except for the circumstances, this is a nice trip home. Very low key, no rush, I'm not going home until I have my brother back. I'm just spending time here.

I hope he improves as much tomorrow as he did today. I still don't know anything about the biopsy. It's still one day at a time. Right now I'm focusing on a kid who was tough enough to go to school and do 2 a day swim practices with a tumor in his head. His last race was a week ago. Anyone tough enough to do that can beat this. Thanks for reading my ramblings.

angry, hang in there. I'm thinking about you and your little brother.


boo


Jan 18, 2008, 3:15 PM
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Angry - hang in there. His pain will ease when the swelling subsides. It is hard to watch. Keep him talking to you. Thoughts your way today.

Help your mom get some rest, too....


charley


Jan 18, 2008, 3:38 PM
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Thanks for the update. Update not ramlings. You're just keeping friends informed of what's happening in your life. It's just gonna take time but a strong young man like that should heal fine. Prayers and good vibes still being sent.


granite_grrl


Jan 18, 2008, 5:16 PM
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Hang in there. I can immagine how scary this is for you.


olive


Jan 18, 2008, 11:00 PM
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Angry, that sounds so scary. I put myself in your place and think how hard it would be to go through this. But, (to repeat what others said) your brother is young and strong, has good support and he, hopefully, will pull through this and make good recovery. You hang in there, and take care of yourself, too.


maww


Jan 19, 2008, 12:07 AM
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Hey man thanks for the updates. Glad to hear your brother is surrounded with so much love and support.

I will keep you in my thoughts and prayers.

I'll send you a PM too with my #. I don't think you're in CO but if you need someone to hang with when you get back, let me know. I'll help as much as I can.


Partner angry


Jan 19, 2008, 4:54 AM
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Thanks guys, instead of writing up his condition for the day, I'm just copying a pasting a portion of an email I wrote a friend of mine (and his) today.

I found out today that with the size of the tumor, even if it's benign (still waiting on results) that he only had a few days left if they didn't operate. That's a hard one to take considering how much I'm trying to treat this as a simple operation and recovery. I can't hardly even envision that it was my baby brother on a table with his brain out. He's not fighting for his life anymore though, just recovering.

Today was a really hard day on my mom. She's just expecting to see bigger improvements than he can make in a day. It's only just now been48 hours since the operation finished up. He's eating whole food now, not the hospital crap; pizza, chicken nuggets, jamba juice, anything goes with him. He's figured out that he can kick his left leg, he moves it all over. I told him they'd tie it down if he got too wild
with it, he totally understood and calmed down. He's got the brightest eyes, I don't know if I mentioned it but he's got the most beautiful eyes. He's so alert and aware, I have no doubt that he's all there
behind those eyes. I can't wait until he can talk to me again. He made some pissed off grunts today, it means he can use his vocal chords, there's no nerve damage he just needs some time and he'll talk just
fine. Same with his right side, he twitched his thumb today. It's there, it's coming back.

It's just so hard to keep in mind that these things take so much time. We want to let him sleep for an hour and come back in and see everything better.


Partner happiegrrrl


Jan 19, 2008, 7:01 PM
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Oh, Angry!

It's okay to cry. And cry, and cry and cry. Your family must be exhausted yet unable to stop with this roller coaster of events and emotions.

You are right - it really is so much to deal with.

Thank God, the universe, simple luck or whatever - that your brother made it to the doctors on time.

It's got to be so hard.

You are doing magnificently, dealing with all this. More wishes upon wishes for the strength, patience and courage you all will need in dealing with this process.

Thanks for the update, and remember to take things easy. You can only do so much, and you need to get rest and nourishment in order to be able to handle this emotional trauma.


Partner macherry


Jan 19, 2008, 8:54 PM
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baby steps, angry, baby steps, all those little achievements are going to help your brother in recovery.




thanks for the update and again, good, positive thoughts/prayers for your brother, and you and your family.


Partner j_ung


Jan 20, 2008, 1:05 AM
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Holy hell! I just saw this. Glad I came in after trickle of good news began. Still, my thoughts are with you and yours, man. I'd be beside myself if it were one of my sisters.


Partner angry


Jan 21, 2008, 3:26 AM
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When I got to the hospital this morning, he was just finishing eating breakfast. Everything looked great except one thing was out abnormal. There was an "alpinist" laying on the table.

Apparently, one of the night nurses is a climber and they hung out and read the mag last night. My bro doesn't have a piece of climbing equipment or photo's in the room. He couldn't sleep last night so this guy kept him company. He probably pulled out the magazine for entertainment having no idea how many things this mute kid has climbed. Pretty cool I think and I'm really thankful to this guy for keeping him company when I'm not there.

But it gets better. He's more alert, way more alert than any of the other days. He's great with his head nods for yes and no. He's feeding himself totally, not even spilling.

Then the doctor came in and asked him to say his name. He paused a minute, opened his mouth, and blurted out his name. That right there was just about the happiest moment of my life. I won't lie, I was in tears.

My folks decided to buy him a laptop. I set it up and opened word. The little guy was able to type all sorts of things. It's all left handed and he's got a bunch of junk strapped to his arm, but he was able to do it. Same with writing, really sloppy cause he's not a leftie but he's writing. Still struggling with text messaging but he reviews my responses and pushes send, or not.

He said multiple words today, mom, dad, john, computer, ryan, ok. Nothing huge but I can't tell you how happy it makes me.

He also loved this thread, especially some of the people who know him. Thanks guys.

I probably won't update daily anymore but I'll let you know how things go periodically.


Partner macherry


Jan 21, 2008, 3:41 AM
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good stuff!!!!!!!!!!!!!!!


snoopy138


Jan 21, 2008, 3:47 AM
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hey, I haven't chimed in yet, but that most recent news is definitely good to hear.


granite_grrl


Jan 21, 2008, 1:34 PM
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angry wrote:
I told him they'd tie it down if he got too wild
with it, he totally understood and calmed down.

Guess when I was in the hospital I didn't understand and they had to tie me down a lot of the time too keep me from pulling out tubes and stuff. Sound like your brother knows more about what's going on than I did Smile. Strong kid. Keep us updated, we're pulling for him and you.


wanderlustmd


Jan 21, 2008, 1:39 PM
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Good to hear Angry, sounds like he's making pretty impressive progress! Keep us posted, we are thinking of you!


reno


Jan 21, 2008, 2:27 PM
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Very good news, Angry. He's on the right track, and it's just going to be a matter of more time and rehab.

Very happy to hear this.


charley


Jan 21, 2008, 2:32 PM
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Good to hear of his progress.


Partner j_ung


Jan 21, 2008, 2:45 PM
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This has become one of my first stops in the morning. "Oh, yeah, gotta go see how angry's brother is doing." Virtual visiting hours...


the_climber


Jan 21, 2008, 5:06 PM
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Angry that is GREAT to hear how much your little Bro has improved!!!!!!!!!!!!!!!!!!!!!!!!!!!!


maww


Jan 21, 2008, 5:36 PM
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I am so happy to hear your brother is improving!! Just reading your posts since Friday made tears well up in my eyes. You guys are in my thoughts.

Thank you for helping me to keep things in perspective.


Partner angry


Jan 22, 2008, 4:09 AM
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I'm having a hard time leaving his room. I basically spend all my time in there anymore. With his laptop we just hang out and watch movies.

I finally dragged myself out of there. Today was another huge day. 6 of his friends showed up to visit. He's talking a little but he can definately talk. He can write very basic stuff but he's a righty and this is all with his left hand. He's alert, he doesn't doze off. It's great.

My sister and I were talking about the stupid stuff we used to do and he was just cracking up. The kid is laughing. He's even cracking up watching funny things on TV. I believe that he understands everything he sees, he's just struggling expressing himself. It is getting better though.

We even wrote some words on the computer and he said some of them. He sometimes gets hung up and says the same word a few times before switching gears to the next one but that's not too bad.

The best part, the PT got him up today! He was sitting on the side of the bed and she got him to kick his leg, several times. He even sort of stood for a minute. He moved his arm. Later in the day he just started using his right arm. It's slower and more labored but it's moving and it's under his control. I am so happy.

We aren't out of the woods yet. He's got a tube going right into his head that continuously drains. Until it stops draining, he can't be released from the ICU. He's still using a catheter and he knows it, he's damn tired of the thing and can't wait to get it out.

Still no word on the pathology of tumor yet. In Cheyenne, it came out benign. They sent it off to Denver to retest it, they want to be certain it's benign, especially since they had to leave a small bit in him. Treatment for that but could involve radiation, medicines, or another surgery. We still don't know.

I am going home tomorrow, will work 5 days, then come back. I have only worked 2 days in Jan, I guess I need to get some stuff in order.

I just can't believe that it was only a week ago today that we even found this tumor. It feels like a very long time.


wanderlustmd


Jan 22, 2008, 1:15 PM
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Good news man, glad it came out benign on the first test. As always, good vibes to you and keep us posted.


boo


Jan 22, 2008, 1:54 PM
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angry, this is all good news. The progress you describe is awesome. Get a lot done this week in CO and get back there this weekend.

Such good news.


reese_7


Jan 22, 2008, 9:34 PM
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Angry, a friend just forwarded me this thread.... wow! I can't imagine how hard this last week has been on you and your family. I wish you all the best. I'll keep you, your brother, and the rest of your family in my prayers.

I'm so glad to hear that he is making good progress! Tell him to keep it up!

Reese


kantkatchme


Jan 30, 2008, 4:39 AM
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hows the little bro doing?


anthonycuskelly


Jan 30, 2008, 9:21 PM
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Hey angry, good to hear your brother made it through the surgery okay, here's hoping he recovers fine (sounds like he will!).

I'm going back to lurking now...


Partner angry


Feb 10, 2008, 5:27 AM
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It's been a couple weeks since I posted on my brothers condition. He's doing OK.

His right side is getting better and better and with help from the PT, he can walk. They took his catheter out the other day and much to the surprise of the nurses, he got up to use the bathroom on his own. I'm sure a 16 year would love to hear that his older brother is posting on the internet about him using the bathroom on his own.

Speech is still tough. It's slower and he often gets hung up on words. For example, I wrote a bunch of easy math problems on a white board and handed it to him, he solved every one of them correctly. I wrote a few more on the board, held it up, and asked what the answer was. He couldn't say, he just kept repeating what the actual problem said.

I'll ask him what he see's on TV, he can't answer until some text hits the screen and he'll say whatever that says. He'll read whole sentences from the newspaper aloud but still struggles just to tell someone what he wants.

He's ripped out several art lines. He needs daily blood work so these make it nicer than constant pokes. They tend to stay in about a day and get thrown. Little booger.

The drain in his head thats been dripping CSF is still there. Until that's out, he can't leave the ICU. They've removed it twice, both times he got a bunch of swelling and was in really bad pain. It also shut him down, as in, no talking, unresponsive, kid.

An operation to put a shunt in his head is on order. Unfortunately, his stay in the hospital has resulted in a slight staph infection. No big deal really but they aren't going to put the shunt in until it's gone. It will go from his head to his stomach and will just get digested away. Creepy to think about but really no big deal. Kids with hydrocephalus have the same operation and are home within 2 days, so this isn't too big of a deal. Somehow in the operation, he lost the ability to absorb CSF, this isn't uncommon. The only exposed part will be a little tube by the ear, it might be covered but just a little, I'm not sure. It's how they clean it, the shunt is permanent.

The pathology came back. The tumor is slow growing and benign. They tested it every which way, that's why it took so long to find out. No cancer at all. It is slow growing, ie, growing. They'll need to figure out what to do about the piece they left in but there's time.

I don't think he'll be working at the scout camp this summer, but in general, I think he'll be nearly himself by then. We'll go back the creek someday when he's ready. His and my trip there was probably the best trip I've had, and it looks like we'll repeat it someday soon.


charley


Feb 10, 2008, 3:40 PM
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It's good to hear your brother is ok and with a prognosis of being much better in time. You're still in my thoughts and prayers.


bent_gate


Feb 10, 2008, 4:14 PM
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It's good to hear he's making progress. It's a lot of small steps and he's making them. Continued best wishes and prayers.


wanderlustmd


Feb 10, 2008, 4:18 PM
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Glad to hear that the tumor is benign. Great news!! I'm sure he'll be back to his old self before too long. Keep us posted and good vibes.


reno


Feb 10, 2008, 4:30 PM
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Slow steps, Angry, but steps in the right direction. Time, patience, hard work, and a positive attitude.

Stay strong.


clausti


Feb 10, 2008, 4:36 PM
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oh, that is amazing news, man! so good to hear that hes getting better.

sounds like hes making really steady progress, and that he's gonna keep getting better.

what part of the brain did you say his tumor is in? the speech recognition and speech output are in diff places right? so they'll get better at diff times as the swelling goes down?

either way, that's cool to hear, and if he's feeling up to it, your bro's def invited to the wedding with you. be a good time!


Partner angry


Feb 11, 2008, 1:54 AM
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C

The tumor was primarily pituitart but was very large. I have a close friend with a pituitary tumor that is small and they aren't even looking at operating. So they aren't all created the same.

They've changed their mind on what type of tumor it was, I don't even know the name of what they settled on. Some version of an Astrocytoma (hello rad route name) but it's very rare apparently.

Imagine taking a jack and separating the two lobes of the brain to get deep at something down there between them. That's exactly what they did. So while it didn't cause any damage to the brain, it really screwed up the two lobes' ability to talk to each other. That is what is coming back.

We're looking at the permanent shunt surgery tomorrow, pending some bloodwork, so it should get him into his own room soon. Good thing, he's pissed.

Another aside, his body weight has dropped from 133 to 120 in the last month. He's visibly much skinnier. If anyone needs to lose weight, lay in a bed for a month.


clausti


Feb 11, 2008, 2:00 AM
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angry wrote:
C...

Imagine taking a jack and separating the two lobes of the brain to get deep at something down there between them. That's exactly what they did. So while it didn't cause any damage to the brain, it really screwed up the two lobes' ability to talk to each other. That is what is coming back.

gotcha. well best wishes for an uncomplicated shunt installment, tell the buckaroo (is he too old for buckaroo??) congrats on all the progress, and advance congrats on future progress!!


reno


Feb 11, 2008, 2:05 AM
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angry wrote:
The tumor was primarily pituitart but was very large. I have a close friend with a pituitary tumor that is small and they aren't even looking at operating. So they aren't all created the same.

No, they're not. That's what makes oncology so difficult.

In reply to:
Imagine taking a jack and separating the two lobes of the brain to get deep at something down there between them. That's exactly what they did. So while it didn't cause any damage to the brain, it really screwed up the two lobes' ability to talk to each other. That is what is coming back.

Gonna take time, bro. Brain cells don't exactly grow on trees, but give it enough time and the body will find a way to adjust or compensate. We're talking months, not weeks.

In reply to:
Another aside, his body weight has dropped from 133 to 120 in the last month. He's visibly much skinnier. If anyone needs to lose weight, lay in a bed for a month.

He's young, he'll get it back soon enough.


uhoh


Feb 11, 2008, 3:29 AM
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angry wrote:
I'm sure a 16 year would love to hear that his older brother is posting on the internet about him using the bathroom on his own.

Dude, don't you know that's what older brothers are for?

I'm glad to hear he's doing better. It sounds like he's going to make a strong recovery.


maww


Feb 11, 2008, 5:07 PM
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So happy to hear of his positive progress. Stay strong and remember we're all thinking of you, him & the rest of your fam.


Partner angry


Feb 23, 2008, 10:07 PM
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Today is a pretty good day I would say.

It's been so long, so FUCKING long, in the ICU. All because they needed to install a permanent shunt in his head. Just to give you an idea, that poor kid had to spend 39 days in the ICU. His neighbors kept dying, he was barely allowed to move, it was loud, and all because he had a CSF drain.

Finally, last Thursday they installed the permanent shunt. They didn't even put him in the ICU post surgery, they put him right in a regular room. It's great.

His mobility is so much better, the room is big and sunny, the TV actually works, and it's quiet. This has improved his spirit so much.

He's walking more and talking a little. These are big gains. Monday he'll be transferred to a rehab hospital, where his day will be filled with activities. This is a big step toward getting home.

Right now, the biggest problem he's got is weakness from his month of being in a bed. Also, somehow related to the brain surgery, any little activity makes him exhausted. He's sleeping like a rock now, because eating lunch wore him out. Hopefully the rehab center and all the activities will strengthen him up and help him to stay conscious after some activity. They'll also be working on fine motor skills and cognitive things too.

I think starting on Monday, we're to the part of this where he can make big gains. No more stagnating in the ICU.


Partner epoch
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Feb 23, 2008, 10:45 PM
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This is good news angry.


charley


Feb 23, 2008, 11:50 PM
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that sounds like great news. My mil spent 10 days or so there and more in a reg. room and then in a rehab section. Time goes by slow but think how much worse for him. Still sending positive thoughts and prayers your way.


clausti


Feb 24, 2008, 12:03 AM
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awesome! good to hear that hes getting to the "accelerated gains" phase.

congratulations to him for breaking out of the ICU! he sounds like such a champ.

i will continue to send happy thoughts y'all's way! it is good to hear updates!



excessive use of exclamation points!


reno


Feb 24, 2008, 2:02 AM
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clausti wrote:
awesome! good to hear that hes getting to the "accelerated gains" phase.

congratulations to him for breaking out of the ICU! he sounds like such a champ.

i will continue to send happy thoughts y'all's way! it is good to hear updates!

What she said. VERY good news, bro.

Keep positive. It'll help your brother.


the_climber


Feb 25, 2008, 3:55 PM
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Great to hear Angry!


maww


Feb 25, 2008, 4:30 PM
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So happy to hear all of this man, hang in there. We're all thinking of your bro!!! He's a spectacular kid. Are you going to show him this thread? He's one of my heroes for sure.


boo


Feb 25, 2008, 10:20 PM
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Angry I was thinking about you guys today and was about to pm when I saw this thread. Ditto to all of the above.

His fatigue from the lack of activity and the sedation he was under a few weeks back. It takes a long time.

When he is back on email, please pm. I've a great friend who went to hell and back in a car wreck last year. Amazing recovery and he's working again. He would likely love to email him and encourage.

Keep him moving. You guys are awesome. What a great brother you are.


wanderlustmd


Mar 12, 2008, 1:51 AM
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How's your brother doing? Hope he is still making strides toward recovery! Sending good vibes your way.


Partner angry


Mar 12, 2008, 3:07 AM
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wanderlustmd wrote:
How's your brother doing? Hope he is still making strides toward recovery! Sending good vibes your way.

Hey, thanks for asking. I've been pretty busy lately and haven't given an update for a while.

I left off with him getting the shunt and out of the ICU. A lot has happened in that time.

First, they moved him to the rehab hospital across town. It was good because it was busier but it was basically an old folks home. He was literally one of two people there that wasn't on a respirator. It's not cool to be a 16 year old boy trying to recover while surrounded by dying people.

Last week my parents got permission to have him transferred to a hospital in Denver. It's Craig Hospital and all they do is brain and spinal injury. Apparently people come from all over the country to recover here, so it's a good place. What I really like about it is that I'm about a 1/2 hr away and it's practically on my way to work, so I can see him all the time.

As to how he's doing. He can get up and walk on his own, go to the bathroom, eat, stuff like that. He is required to be in a wheelchair unless totally supervised but it's a start. He's able to say some things, still pretty short sentences and mostly as responses to questions but it's a lot more.

Today is his birthday. He's 17 now. I'd really hoped he'd have it at home but this is more like a 6 month to year recovery, nothing quick.

Lots of good things, lots of progress, still a long way to go but we're heading in the right direction.


clausti


Mar 12, 2008, 3:10 AM
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Hey, good to hear his situation is still improving! Keep up with the good brothering, and i am gonna keep on sending positive energy his way.


maww


Mar 12, 2008, 3:13 AM
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Terrific! So happy to hear of his progress - positive thoughts and prayers are with him, you & the rest of your family.

And a great big happy 17th birthday to him!


uhoh


Mar 12, 2008, 4:03 AM
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I'm glad to hear he's doing well. I saw this thread pop back up to the top of the forum and I freaked because I thought something had happened. Anyway, happy b-day to your bro.


charley


Mar 12, 2008, 12:05 PM
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It's good to hear he's doing well. Still sending the positive vibes. Tell him Happy Birthday.


Partner macherry


Mar 12, 2008, 4:12 PM
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a happy belated birthday to you brother Angry. Glad to hear he's back in Denver and you can see him regularly.


glad he's on the road to recovery


wanderlustmd


Mar 13, 2008, 1:45 AM
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angry wrote:
wanderlustmd wrote:
How's your brother doing? Hope he is still making strides toward recovery! Sending good vibes your way.

Hey, thanks for asking. I've been pretty busy lately and haven't given an update for a while.

I left off with him getting the shunt and out of the ICU. A lot has happened in that time.

First, they moved him to the rehab hospital across town. It was good because it was busier but it was basically an old folks home. He was literally one of two people there that wasn't on a respirator. It's not cool to be a 16 year old boy trying to recover while surrounded by dying people.

Last week my parents got permission to have him transferred to a hospital in Denver. It's Craig Hospital and all they do is brain and spinal injury. Apparently people come from all over the country to recover here, so it's a good place. What I really like about it is that I'm about a 1/2 hr away and it's practically on my way to work, so I can see him all the time.

As to how he's doing. He can get up and walk on his own, go to the bathroom, eat, stuff like that. He is required to be in a wheelchair unless totally supervised but it's a start. He's able to say some things, still pretty short sentences and mostly as responses to questions but it's a lot more.

Today is his birthday. He's 17 now. I'd really hoped he'd have it at home but this is more like a 6 month to year recovery, nothing quick.

Lots of good things, lots of progress, still a long way to go but we're heading in the right direction.

Great news, glad to hear he is in a more positive environment. Glad to hear things are continuing to shape up; this time next year he'll probably be roping up with you!

Take care, keep us posted.


reno


Mar 13, 2008, 2:13 AM
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Freaking awesome news, Angry. Good for him, and good for you and your family for staying positive.

I'm going to join Clausti and continue to send you and your bro the best vibes I can muster.


bent_gate


Mar 13, 2008, 2:28 AM
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Great to hear that progress is continuing. I have a brother of my own, and from experience, believe me when I say to you that you have been an outstanding brother.

I will continue to wish and pray for the best outcome for all of you.


chossmonkey


Mar 13, 2008, 12:32 PM
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Good to hear things are looking up.

I can relate to having a loved one in one of those shitty rehab places. Good to hear he was moved to someplace he can really work on recovering and you can see him more easily.


Its a long winding road in front of your brother, you and your family. Take it one step at a time and it won't seem so far away.


sungam


Sep 27, 2008, 4:18 PM
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Any progress in your bro's recovery, angry?


brownie710


Sep 27, 2008, 4:59 PM
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I speak for all of us when I say we hope for a speedy recovery, he knows your in his corner, that means more than you realize.


Partner angry


Sep 27, 2008, 6:08 PM
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sungam wrote:
Any progress in your bro's recovery, angry?

I'm in a coffee shop in Moab right now, Saturday is always a good time to take a rest day when you don't work.

Well, I just got off the phone with him moments ago. He's doing well. Sometimes it takes a little prompting to get him to say something, it's not from lack of something to say but more about trouble putting words to it. I called him to tell him that I sent (fuck I crushed) Broken Brain with a "Northern Colorado Rehab Hospital" shirt on, I thought he'd find that funny. Hopefully in a few years he'll do the same.

He's in school this semester, he's lost his Ipod, glasses, and phone several times but eventually keeps finding them. His short term memory still suffers but it's ok. All the constant social interaction of school keeps his brain busy and he's getting more talkative. At the football games he ends up selling candy with the swim team instead of watching, which is what he'd be doing if he was still on the team so that a good thing.

He is a Junior again this year and will not graduate with his class, he should graduate with the current junior class though. All his classes are easy this year, to sort of warm him back into things and next year should be a more normal senior year.

The recruiter brought the climbing wall to the school the other day, he was the fastest kid in his class up the hardest route. 6 months in the hospital, a brain tumor, and a stroke but he's still my brother. I'm glad to hear he at least remembers how to move (it was probably 5.8).

Warning Not Vegan FriendlyHe's been shooting his bow a lot, it's good for strength and coordination. Well, anyway he shot a Pope and Young antelope last week. I'm not sure I could get a trophy antelope with an arrow. I'm pretty proud of that.

What's left to be determined are what his physical limitations are and whether or not he's college material. Right now, I'm hopeful he'll be leading a pretty normal life.


sungam


Sep 27, 2008, 8:45 PM
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Sounds good, thanks for the update.
Angry wrote:
he was the fastest kid in his class up the hardest route. 6 months in the hospital, a brain tumor, and a stroke but he's still my brother.
Sounds like it!


geogoddess


Sep 28, 2008, 1:26 AM
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thats awesome, that he can handle school and stay socially active. Glad to hear he's pulling down on the wall! No doubt it is alot of hard work for him, and he's lucky to have his big bro backing him up.

While I am not always in favor of some hunting styles, I've always carried alot of respect for anyone that can hunt x a bow. I've always had great interactions w/ bowhunters when I was out doing field work. They are often out there alone or w/ a friend, are quiet (sometimes to the point of scaring the pants off me when I walk by them and don't seeum tii the last second).... doesn't mean I'm gonna spill the beans on where the elk were, though Angelic that would spoil their fun.

when do you leave on your desert trip?


geogoddess


Sep 28, 2008, 1:27 AM
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... oh wait, duh, you're in moab... hows the climbing, dude!!


uhoh


Sep 28, 2008, 4:02 AM
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angry wrote:
sungam wrote:
Any progress in your bro's recovery, angry?

I'm in a coffee shop in Moab right now, Saturday is always a good time to take a rest day when you don't work.

Well, I just got off the phone with him moments ago. He's doing well. Sometimes it takes a little prompting to get him to say something, it's not from lack of something to say but more about trouble putting words to it. I called him to tell him that I sent (fuck I crushed) Broken Brain with a "Northern Colorado Rehab Hospital" shirt on, I thought he'd find that funny. Hopefully in a few years he'll do the same.

He's in school this semester, he's lost his Ipod, glasses, and phone several times but eventually keeps finding them. His short term memory still suffers but it's ok. All the constant social interaction of school keeps his brain busy and he's getting more talkative. At the football games he ends up selling candy with the swim team instead of watching, which is what he'd be doing if he was still on the team so that a good thing.

He is a Junior again this year and will not graduate with his class, he should graduate with the current junior class though. All his classes are easy this year, to sort of warm him back into things and next year should be a more normal senior year.

The recruiter brought the climbing wall to the school the other day, he was the fastest kid in his class up the hardest route. 6 months in the hospital, a brain tumor, and a stroke but he's still my brother. I'm glad to hear he at least remembers how to move (it was probably 5.8).

Warning Not Vegan FriendlyHe's been shooting his bow a lot, it's good for strength and coordination. Well, anyway he shot a Pope and Young antelope last week. I'm not sure I could get a trophy antelope with an arrow. I'm pretty proud of that.

What's left to be determined are what his physical limitations are and whether or not he's college material. Right now, I'm hopeful he'll be leading a pretty normal life.

i'm really glad to hear your bro is doing well. i'll have to call my little bro some time and see how he's doing.


charley


Sep 28, 2008, 12:56 PM
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It's good to hear how well he is doing.


justroberto


Mar 11, 2009, 4:58 PM
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Weird that I came across this thread today. Happy birthday to him, and here's hoping that all is going well.


the_climber


Mar 11, 2009, 5:25 PM
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I guess that means happy 18th to angry's bro.

What's the update these days man?


justroberto


Mar 11, 2009, 5:45 PM
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cigarettes and nudie bars, hopefully.


Partner angry


Mar 11, 2009, 5:58 PM
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justroberto wrote:
cigarettes and nudie bars, hopefully.

Not quite.

He's back in school, taking modified classes and struggling to keep his grades passing. It's probably because he remembers being a straight A student and the material seems so easy that he doesn't pay attention. It's all part of him not accepting his new self yet.

He did join the swim team this winter and managed to swim about the same times as he had last season. Even a couple PR's. Not bad considering the year he's had.

He got invited on an all expenses paid guided hunting and fishing trip to Alaska this August. By all expenses I mean they're flying him there, buying him binoculars, a rifle, scope, outdoor clothes, and paying to ship the meat back. I'm eating caribou steak this fall.

The 7% of the tumor that they weren't able to remove is not growing, it's completely dead. That's good, there was a chance he'd need another surgery but it doesn't look like he will. Of course they'll monitor the little chunk the rest of his life so there won't be any surprises with it.

I wish I could say that he's back to normal and taking college prep courses like any other 18 year old. Maybe in another year. He's come so far this year, hopefully he'll come just as far next.


clausti


Mar 11, 2009, 6:16 PM
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hey, dude, glad to hear that your brother has made so much progress! good to hear, too, that he's feeling better, even if his academic life is not yet again all that it once was.

tell him evil christina says hey, and continued wishes for progress.

Smile

and, also, he's 18 now, and as such is fair game for lewd comments about hot swimmer boi's, yes? Laugh


charley


Mar 11, 2009, 6:18 PM
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Wish him a HAPPY BIRTHDAY!!
When I was that age you could buy beer in most states.
It is good to hear how far he has come and how well he is doing. It must be so hard to adjust though.
Good luck, too.


notapplicable


Mar 12, 2009, 1:50 AM
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Thats awesome news man. The tumors not growing he's swimming strong and still making progress in recovery. Given the circumstances, you can't ask for much more than that.


wanderlustmd


Mar 12, 2009, 2:14 AM
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Excellent news! Sounds like he's making pretty good progress, all things considered. Here's to another year of the same.Smile


Partner angry


Mar 12, 2009, 3:47 AM
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Thanks guys.

He told me tonight he'll join club swimming over the spring and X-country next fall and swim again in the winter.

Still hasn't decided if he wants to take his old summer job back working at a scout camp or if he wants to stay local and work at the pool. I'd rather see him stay at the pool. I worked at that pool when I was his age, not only will he make lots of friends his age, see lots of girls (that I'm not allowed to notice) in bikini's, but he's got like a 65% chance of getting laid.

I want only what's best for him. That and I'll be able to take him climbing some.

Everyone in my family including him has always been above average at what they choose. My sister dropped out of HS and is a fucking forensic pathologist for example. DO NOT play scrabble with my dad, you've been warned. My brother was never raised to be average, it's a real challenge for him to accept that he might not be the brightest kid in the class anymore.


sungam


Mar 12, 2009, 6:55 AM
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65%? Those are big numbers, John. Drop those sneakily into conversation and he'll spend the summer at the pool for sure.
Good to hear that all's going well.


the_climber


Mar 12, 2009, 7:09 AM
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Angry, man, sound like things are going good for your bro. To bounce back that much after everything he's been through... abso-fukin'-lutely amazing! Seriously!
Keep giving him encouragement and forward all of our well wishes man. He may find it hard, but DAMN.... there's not many folks around that could survive through that let alone still accomplish that much. He's got the tuff SOB award in my books.

Buy him a good Scotch on my behalf for his Birthday. I'll pay ya back whenever I meet you in real life... but seriously, make sure it's a good Scotch... not some imatation BS... I know you're a good bro and will make sure he know's the value of a good scotch, and fine women... or is that a good woman and fine scotch....

...hmmmm, I think I need to another drink to think about that one.... BBBBWWWWaaaahahahahahha!


All the best man!


Partner macherry


Mar 12, 2009, 3:18 PM
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angry wrote:
Thanks guys.

He told me tonight he'll join club swimming over the spring and X-country next fall and swim again in the winter.

Still hasn't decided if he wants to take his old summer job back working at a scout camp or if he wants to stay local and work at the pool. I'd rather see him stay at the pool. I worked at that pool when I was his age, not only will he make lots of friends his age, see lots of girls (that I'm not allowed to notice) in bikini's, but he's got like a 65% chance of getting laid.

I want only what's best for him. That and I'll be able to take him climbing some.

Everyone in my family including him has always been above average at what they choose. My sister dropped out of HS and is a fucking forensic pathologist for example. DO NOT play scrabble with my dad, you've been warned. My brother was never raised to be average, it's a real challenge for him to accept that he might not be the brightest kid in the class anymore.

i think the odds of getting laid are more than 65% if compared with his former scout camp job!!!!


Partner camhead


Mar 12, 2009, 3:23 PM
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macherry wrote:
angry wrote:

Still hasn't decided if he wants to take his old summer job back working at a scout camp or if he wants to stay local and work at the pool. I'd rather see him stay at the pool. I worked at that pool when I was his age, not only will he make lots of friends his age, see lots of girls (that I'm not allowed to notice) in bikini's, but he's got like a 65% chance of getting laid.


i think the odds of getting laid are more than 65% if compared with his former scout camp job!!!!

There are SO many directions I could take "scout camp" and "chances of getting laid," but unfortunately all are expressways to the land of Tuphar.


Partner angry


Mar 12, 2009, 5:07 PM
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Not 65% better than the scout camp job. That would be implying that his chances would be greater than zero at camp and they are not.


Partner happiegrrrl


Mar 13, 2009, 6:36 PM
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I think if you told just about any 18 year old guy that his chance of getting laid was anywhere above.....oh, say .00000001%, he'd see that as promising odds.

Glad it sounds like he's going to be physically recovered, but really hope the frustrations with his metal ability don't drag him down. That aspect can't be underestimated. It's as serious as someone who used to climb 5/whatever and was all about that, and then got injured finding they can no longer climb that grade.

More serious, of course, because his is all-encompassing and climbing is...well, it IS just climbing. But the analogy is relatable to this group.


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